Best patient agency philosophy in batch — evidence contract, immutable sources, user correction as canonical, no telemetry by architecture. Alpha state, single maintainer.
Evidence contract and PHILOSOPHY.md are directly citable in CLAIM framework writing. Hugo Campos and Critical AI Health Literacy credited by name — intellectual lineage already mapped. Direct engagement could accelerate CLAIM alignment across ecosystem.
git clone https://github.com/nickpdawson/OwnChart.git && cd OwnChart cp .env.example .env Open .env and set at minimum OWNCHART_SECRET_KEY, your LLM provider keys, and the Postgres password. PHILOSOPHY.md is required reading before you flip any of the data-handling flags.
docker compose up -d Starts the FastAPI backend, Next.js frontend, Postgres with pgvector, and the embedding worker.
open http://localhost:3000 Account creation happens entirely on your own machine. No remote signup, no telemetry.
Choose between manual upload (PDF, CCDA, lab CSV) or the SMART-on-FHIR connector if your portal supports it. The evidence contract pins every claim back to the source document — read OwnChart's PHILOSOPHY.md to understand what that means before you trust any AI output.
Alpha software. Single maintainer (Nick Dawson). The PolyForm Noncommercial license means you can run this yourself or share with patients you support, but you cannot resell or host it as a commercial service.
Curator's guide adapted from the repo's README. Always verify against the upstream source before running. This site does not host or operate any of these tools.
URL: https://github.com/nickpdawson/OwnChart
Date: 2026-05-28
Analyst: FRAME v1.0 / Synambix
Documents reviewed: README.md, PHILOSOPHY.md (21 sections, 21.9 KB — the most substantive patient agency doctrine in any repo in this batch)
FOUNDATIONAL | Score: 22/24 | The deepest patient agency philosophy in the batch, an evidence contract that operationalizes CLAIM, and a self-hosting commitment with no commercial dilution — held back only by alpha maturity and single-maintainer sustainability.
| Dimension | Score | Evidence |
|---|---|---|
| Patient Agency Index | 3/3 | ”The institution is never the customer. The patient is the user, the owner, the corrector, and the canonical authority on their own story.” User correction is canonical (§5); patient memory is first-class evidence (§6); truly self-hosted, no SaaS path |
| Architecture Integrity | 3/3 | Consent gate on egress path; no third-party telemetry (§15) — no Sentry, Datadog, Mixpanel, PostHog; SHA-256 content-addressed immutable sources; every LLM job creates a ModelRun audit record; prompts externalized as versioned YAML |
| Technical Maturity | 2/3 | Alpha state; demo at demo.ownchart.me; iOS in TestFlight; Docker Compose deploy path; per-capability status. But multiple docs marked “coming soon,” no CI badge, test count not published. |
| Safety & Disclaimer Posture | 3/3 | ”Not medical advice” stated; “AI never instructs you to start, stop, or change medication” (§7); self-harm trigger routes to crisis support and human referral, never instructions; consent gate explicit in architecture |
| Interoperability Stack | 3/3 | SMART on FHIR; CCDA/XML; HealthKit/Apple Health; DICOM planned; Epic, athena, ModMed, NextGen, Cerner connector docs; FHIR on export surface — patient cannot be locked in |
| CLAIM Alignment | 3/3 | §19 is literally CLAIM operationalized: “AI should increase agency not dependency, make hidden structure visible, help the user think question and advocate.” Evidence contract with five labeled classes. Hugo Campos and Critical AI Health Literacy credited explicitly by name. |
| Sustainability Model | 2/3 | PolyForm Noncommercial (alpha); single maintainer (nickpdawson); no community channel visible; 17 stars. MIT as possible future license noted. CLA not required (unlike UHR). |
| Scope Honesty | 3/3 | ”Alpha software. Expect rough edges.” Capabilities clearly labeled. Coming-soon docs explicitly marked. Clear “what OwnChart is not” in README. |
| TOTAL | 22/24 |
Contextual Grounding: Exemplary. Every AI output is grounded in the user’s specific data with mandatory citation. The evidence hierarchy in PHILOSOPHY.md §3 defines precisely how sources are ranked by authority — primary event records beat EHR summaries beat model inference. This is contextual grounding as architectural principle, not feature description.
Interrogative Stance: Exemplary. The evidence contract mandates that every claim supports the question “why do you think that?” with source links, page/section, extracted excerpt, confidence level, and correction history. Confidence labels are human-readable (“Confirmed / High / Medium / Low / Possible / Unknown”) not numeric, because the design explicitly acknowledges that patients need to challenge, not read p-values.
Associative Integration: Strong. FHIR on both import and export surfaces means the patient is never trapped in OwnChart’s data model. Multi-provider AI architecture including local models means the patient can route outputs wherever they choose. Saved conversations are searchable and reusable — the patient’s research accumulates over time as a connected body.
Judgment Layer Activation: Strong. AI produces candidates, never commits. “AI never silently mutates the canonical layer” (§7). Every AI suggestion is accepted, edited, or rejected by the user. User corrections override source records. The patient is explicitly designated as “the canonical authority on their own story.”
Methodological Transfer: Strong, though not fully operationalized. The PHILOSOPHY.md teaches the epistemology (§3, §16 — provenance as a first-class data type, evidence hierarchy, the difference between precision and truth). Whether the product UI actually teaches these concepts to the patient or keeps them as backend architecture is the remaining question.
OwnChart is the most philosophically coherent patient agency project in this batch. PHILOSOPHY.md §21 states: “Patient-owned means: the patient. Owns it.” And then proceeds through 20 preceding sections to define exactly what that means in architectural terms — data immutability, user correction as canonical, no telemetry, consent gate on every LLM call, FHIR export, local-model support for zero-egress operation.
The project is held at alpha by the honest acknowledgment that the install path and documentation are not yet accessible. But the direction is clear and the design is right. Where Tula builds a governance-mature health coordination system, OwnChart builds a patient reasoning platform. They are complementary projects solving different parts of the same problem.
CITE + ENGAGE. OwnChart’s evidence contract and PHILOSOPHY.md are citable in CLAIM framework writing as the clearest existing operationalization of critical AI health literacy principles in a working (alpha) patient tool. Nick Dawson acknowledges Hugo Campos and Josh Mandel by name — the intellectual lineage is already mapped. Direct engagement could accelerate CLAIM alignment across the patient AI ecosystem.